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Frequently Asked Questions

Why do I have to fill in an EOI?
Two reasons:
- It's a good way for you to think about and get clarity around what kind of work you want to do.
- It helps us to make sure that we can support you effectively.

Who choses the communities?
The project steering group which is made up of the GroundSwell Project board, staff and Western Sydney University.

Why are Western Sydney University involved?
They are helping us research this project and to identify what works and what doesn't. We also we want to capture more Australian ComCom stories and experiences to help the movement grow and gain a deeper understanding of successes and challenges. Research is one way to do that.

Will we get funding?
We do not have the capacity to offer financial support through this project. As part of developing your ComCom project you might consider accessing some local funding but it’s not essential to start up. There are pros and cons with funding community development projects from the beginning – ComCom is ultimately about changing culture – we’ve found that projects are better set up for long term sustainability when they don't start with a pool of funding. Local projects and leaders tend to access the right kind of localised funding to support their project as it grows. We’ll be supporting that.

What is Death Literacy and why is it relevant?
The Caring at end of life research team (2009-2016) Horsfall, Leonard, Noonan (WSU) and Rosenberg (QUT) coined the term ‘death literacy’ via research on caring networks. Death literacy is the practical know-how needed to plan well for end of life. This includes knowledge, skills, and being able to take action. Getting involved in end of life care and having conversations can help build our death literacy, therefore, the more people get involved in caring, the higher the level of death literacy in the community.

What does a Public Health approach to palliative care mean?
A new concept in palliative care which has emerged over the past decade is that of public health palliative care (also known as health promoting palliative care). This is based on the public health concept of a population approach linking to the World Health Promotion Guidelines ‘the Ottawa Charter’. The goals of public health palliative care are described as:
• Building public policies that support dying, death, loss and grief
• Creating supportive environments (in particular social supports)
• Strengthening community action
• Developing personal skills in these areas, and
• Re-orientating the health system.
The compassionate communities model has also been used to describe engagement of communities in matters related to death and dying, such as death education in schools and engaging public policy. Through this approach, we can socialise the conversations and caring around end of life so that we as a society are better prepared to respond to terminal illness and death (CareSearch).


Why is the GroundSwell Project well placed to lead this work?
Our reputation as innovators in the end of life space, consolidated through 8 years of experience and the delivery of over 60 + health based projects led us to being identified as being well placed to affect systemic change by the Wicking Trust in 2017.  Our purpose is to create a more death literate society, one where people and communities have the practical know-how needed to plan well for end of life. This means shifting focus from 'talking about it' to transforming this complex conversation into one of deep community engagement, social action and empowerment.

If you haven't found the answer to your question here, please get in touch with our Compassionate Communities National Lead, Holly Rankin Smith: holly@thegroundswellproject.com