PHPC research & resources

Abel, J., Walter, T., Carey, L., Rosenberg, J., Noonan, K., Horsfall, D., Leonard, R., Rumbold, B. & Morris, D. (2013). Circles of Care: should community development redefine the practice of palliative care? BMJ Supportive & Palliative Care, doi: 10.1136/bmjspcare-2012-000359

Caring at end of life research at Western Sydney University:

 

Western Sydney University: Developing compassionate communities: the caring at end of life research program.

Horsfall, D., Yardley, A., Leonard, R., Noonan, K., & Rosenberg, J. P. (2015). End of Life at Home: Co-Creating an Ecology of Care. Penrith, N.S.W.: Western Sydney University.

Noonan, K., Horsfall, D., Leonard, R. & Rosenberg, J.P. (2016). Developing death literacy. Progress in Palliative Care, 24(1). Published online first. doi:10.1179/1743291X15Y.0000000016

Rosenberg, J.P., Horsfall, D., Leonard, R. & Noonan, K. (2017 accepted) Informal care networks’ views of palliative care services: Help or hindrance? Death Studies, doi: 10.1080/07481187.2017.1350216

Leonard, R., Horsfall, D., Noonan, K. & Rosenberg, J.P. (2017) Identity and the end-of-life story: a role for psychologists. Australian Psychologist. Special Issue: Psychology and End-of-life.

Leonard, R., Horsfall, D., Noonan, K., & Rosenberg, J. (2017 in press). The positioning of formal service providers in support networks for caring at end-of-life at home: A social network analysis. British Medical Journal: Supportive and palliative care.

Horsfall D., Leonard R., Rosenberg J.P. & Noonan K.  (2017) Home as a place of caring and wellbeing? A qualitative study of informal carers and caring networks lived experiences of providing in-home end-of-life care. Health and Place, 46, 58-64. doi:10.1016/j.healthplace.2017.04.003

Rosenberg, J.P., Horsfall, D., Leonard, R. & Noonan, K. (2015). Informal caring networks for people at end of life: building social capital in Australian communities. Health Sociology Review, 24(1), 29-37. doi:10.1080/14461242.2014.999400

 

Public Health Palliative Care Unit at LaTrobe University:

Aoun, S., Breen, L., O’Connor, M, Rumbold, B. & Nordstrom, C. (2012). A public health approach to bereavement services in palliative care. Australian and New Zealand Journal of Public Health 36(1), 14-16. DOI: 10.111/j.1753-6405.2012.00825.x

Aoun, S., Breen, L., Rumbold, B., Howting, D. (2014). Reported experiences of bereavement support in Western Australia: a pilot study. Australian and New Zealand Journal of Public Health. doi: 10.1111/1753-6405.12177

Aoun, S., Breen, L., Howting, D., Rumbold, B., McNamara, B., Hegney, D. (2015). Who needs bereavement support? A population based survey of bereavement risk and support need. PLOS One. Doi:10.1371/journal.pone.0121101.

Rumbold, B. (2012). Compassionate care: Engaging the spirit in care. Progress in Palliative Care 20 (2), 106-113.

Rumbold, B. (2013). Spiritual assessment and healthcare chaplaincy. Christian Bioethics. doi: 10.1093/cb/cbt027

Breen, L., Aoun, S., O’Connor, M., Rumbold, B. (2014). Bridging the gaps in palliative care bereavement support: an international perspective. Death Studies. doi: 10.1080/07481187.2012.725451

Rumbold, B., Aoun, S. (2014). Bereavement and palliative care: A public health perspective. Progress in Palliative Care 22(3), 131-135.

Rumbold, B., Aoun, S. (2016). An assets-based approach to bereavement care. Bereavement Care doi: 10.1080/02682621.2015.1115185

Rosenberg, J., Mills, J., Rumbold, B. (2016). Putting the ‘public’ into public health: community engagement in palliative and end of life care. Progress in Palliative Care doi: 10.1080/09699260.2015.1103500

Breen, L. J., Aoun, S. M., Rumbold, B., McNamara, B., Howting, D., & Mancini, V.  (2017). Building community capacity in bereavement support: Lessons learnt from bereaved former caregivers. American Journal of Hospice and Palliative Medicine, 34, 275-281.

Grindrod, A., Rumbold, B. (2017). Providing end-of-life care in disability community living services: An organizational capacity-building model using a public health approach. J Appl Res Intellect Disabil. DOI: 10.1111/jar.123972

Aoun, S., Rumbold, B., Howting, D., Bolleter, A, Breen, L. (2017). Bereavement support for family caregivers: The gap between guidelines and practice in palliative care. PLoS ONE 12(10): e0184750. 

PhD:

Rosenberg, JP (2007) A study of the integration of health promotion principles and practice in palliative care organisations.  http://eprints.qut.edu.au/16586/1/John_Patrick_Rosenberg_Thesis.pdf

Books:

Compassionate Cities

Health Promoting Palliative Care

International books with Australian case studies:

Compassionate Communities: Case Studies from Britain and Europe

International Perspectives on Public Health and Palliative Care

Practice:

Compassionate Cities Charter

See the Compassionate Communities Symposium

Dying To Know Day

UK Toolkit